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The risks with
ETS
Learn how this surgery is performed.
ETS:
(Endoscopic Transthoracic
Sympathectomy)
Means cutting sympathetic nerve or removing a sympathetic ganglion.
ETS-C and ETS-B: The full name of ETS-C or ESB is Endoscopic Thoracic Sympathetic Block by
clamping. It means interrupting sympathetic nervous conduction by clamping
with a titanium clip and then therapeutic purpose is achieved. No cut of
nervous trunk is performed on clamping method, for this sake, it possesses
reversible potential by removal of the clip.
Those methods does not
provide for guaranteed complete reversal, but the methods gives a much
greater opportunity for reversal.
ESB-4: Means block 4th segment of Thoracic Sympathetic Ganglion to treat hand and
armpit sweating problems. The specialty of ESB4 is which can treat hand or
armpit sweating, effectively without inducing reflex sweating.
The Lin-Telaranta classification of symptoms: In HH,
(Hyper Hydrosis) or hand sweating, only the T4 level is treated In FS, or facial sweating, as in CH or craniofacial hyperhidrosis, only the
T3 level needs to be treated In FB, or facial blushing, T2 level needs to be treated In SP, or social phobia, depending on the more specific examination, left
sided T2 to T4 treatment may be sufficient, in some cases the surgery has to
be bilateral.
Read more below about blushing and sweating.
The Sympathetic Nervous System.
Picture
The sympathetic and the parasympathetic nervous system are parts
of what is commonly called the autonomic nervous system. (Autonomic = can not be controlled by the mind).
You can say that these systems work in balance with each other and directly
or indirectly affect almost every structure in the body (e.g. heart
frequency, heart capacity, lumbar function, kidneys, blood vessels, stomach
and intestines)
• The sympathetic nervous system has an active "pushing" function.
• The parasympathetic has mainly a relaxing function.
The sympathetic nervous system is located to the sympathetic chain, which
connects to skin, blood vessels and organs in the body cavity. The
sympathetic chain is located on both sides of the spine and consists of
ganglia’s.
The autonomic nervous system is most important in two situations: emergency
situations that cause stress and require us to "fight" or take "flight", and
no emergency situations that allow us to "rest" and "digest".
The autonomic
nervous system also acts in "normal" situations to maintain normal internal
functions and works with the somatic nervous system. (The somatic nervous
system controls all voluntary systems within the body.)
When the body reacts to signals about e.g. danger it is the sympathetic
ganglia that makes The lungs and the bronchial tubes are widened to give us
more oxygen. The motility in the intestine is reduced - we shall not digest
food - we must fight or run away!
Blood is sent to the brain while skin and internal organs get less. Muscle tension is increased. Heart rate and force is increased. Below you can find a summary of some of these effects:
|
Sympathetic |
Structure |
Parasympathetic |
|
Rate increased |
Heart |
Rate decreased |
|
Force increased |
Heart |
Force decreased |
|
Bronchial muscle relaxed |
Lungs |
Bronchial muscle contracted |
|
Pupil dilation |
Eye |
Pupil constriction |
|
Motility reduced |
Intestine |
Digestion increased |
|
Sphincter closed |
Bladder |
Sphincter relaxed |
|
Decreased urine secretion |
Kidneys |
Increased urine secretion |
The Risks and the Side
effects of ETS:
Below is a list of possible symptoms which you may or may not encounter. Each person reacts differently, so please do not believe that you will
develop all the symptoms below.
The side effects you may get depends a lot on which T you disconnected and
with what method that was done, the more aggression the surgeon used on the
nerve and the tissue the more
side effects. It is unclear how much the side effects differs between
the commonly used ETS methods listed above.
Alertness Because the sympathetic nervous system controls some very specific functions
that tie in directly to brain function, fiddling with it can severely
deplete one's ability to concentrate and general sense of mental stability
and alertness. A lot of ETS:ers describe it as a feeling of fuzziness
Death There are 2 problems here: Firstly, the small number of people who have died
on the operating table. Whilst there is a risk in any surgery, ultimately
this is an unnecessary surgery. There is an argument as to whether ETS
should be done unilaterally (one side at a time), thus avoiding the risk of
collapsing both lungs in the same operation. The tragic death of an Irishman
on the operation table last year received a coroner's verdict of death by
medical misadventure, and High Court action has been commenced. Secondly, death has followed ETS through consequent suicide due to side
effects. Horribly, a young man in USA committed suicide in March 2003. Also
around the world people have made multiple suicides and attempts, directly
because of ETS side effects.
Fatigue This loss of energy has been considerable enough to disable patients. Some
degree of fatigue is not uncommon
Flushing Many patients find that after ETS they develop a flushing problem. There
seems a lot of confusion as to why this happens, so all we can do is repeat
some of the ideas which attempt to explain this. A distinction is drawn here
between blushing, and flushing. Sympathectomy surgeon Telaranta describes
blushing as a sympathetic mechanism, whilst flushing is a parasympathetic
mechanism. One might wonder then whether removing sympathetic tone allows
the parasympathetic system to take over, thus causing flushing.
Another idea is that the sympathetic system is responsible for constricting
the blood vessels, whilst the parasympathetic system allows for the
opposite. Thus, removal of sympathetic tone allows too much parasympathetic
stimuli, engendering vasodilatation, which manifests as redness on the face.
This ties in with the reason for using ETS to treat Raynauds of the hands ~
to remove sympathetic tone, thus the blood vessels dilate, so that they get
warmer. Telaranta is quoted as saying that dilation of blood vessels in the
peripheries due to sympathectomy is a tool for treating Raynauds, but the
same action does not happen in the face because the sympathetic system works
differently there.
A much simpler idea is that, where before ETS, flushing due to heat,
hormones and emotion could be avoided through the natural cooling mechanism
of perspiration from the head, the inability to release this heat causes
flushing.
ETS surgeon Reisfeld suggests the problem is due to denervation
hypersensitivity. Here, the blood vessels become very sensitive to certain
circulating hormones within the blood system
Gustatory Sweating One of the few possible side effects which the Surgeons all acknowledge,
though there is huge disparity in quoted incidence. One recent study (Video
assistance reduces complication rate of thoracoscopic sympathicotomy for
hyperhidrosis (Johannes Zacherl, MDa, Martin Imhof, MDa, Erik R. Huber, MDa, Eugen G. Plas,
MDa, Friedrich Herbst, MDa, Raimund Jakesz, MDa, Reinhold Függer, MDa)
studied 558 patients and found 50.4% with Gustatory Sweating. Research
Frey's Syndrome.
Heart problems Bradycardia is a recognized potential side effect of sympathectomy. Two
American patients of surgeons who also operate in Britain advised that PET
scans showed damage to the sympathetic nerves innervating the heart. One was
told that he was somewhere between normal and pure autonomic failure. While
it is not uncommon to complain of reduced exercise capacity, very few have
complained of significant heart problems.
Horner's syndrome This can be brought about by both ETS and nerve graft "reversal". The low
incidence of Horner's through sympathectomy possibly explains why it is
always included as a possible side effect by promoters of sympathectomy. The
occasional unfortunate ancillary advice that this is a condition that can be
remedied by a simple operation is perhaps a little misleading.
Hyperhidrosis
The idea that post ETS hyperhidrosis is solely due to compensatory sweating
is a nonsense. The total body perspiration experienced after ETS is greater
than the total body perspiration before ETS. This extra amount has been
described as "reflex sweating". No one fully understands it, but theories
advanced attribute it to bad feedback from the build up of scar around
nerves, or the break in communication between the brain and the lower body
sweat glands. Even using the Surgeons' vocabulary, the nonsense statistics
of reported compensatory sweating are now being replaced by more realistic
figures, such as Gossot et al's 2001 publication about 940 patients, which
advised an incidence of 100%. A 2003 publication by Gossot et al advised
that compensatory hyperhidrosis did not improve with time.
Impotence Long
recognized to be a side effect of lumbar Sympathectomy (same nerve
chain, though cut lower down the trunk), there has been a surprising
reticence to acknowledge impotence due to thoracic Sympathectomy. The
Radisson Group contains members with greatly reduced sexual strength which
can not be attributed to psychological problems in the wake of ETS. Erec dys
is a recognized symptom of autonomic dysfunction. (Indeed autonomic
dysfunction also has symptoms of dizziness, bladder atone, dry eyes & mouth,
and pupil abnormalities.) Sympathectomy is a massive trauma to the autonomic
system. This seems to affect a relatively low percentage f people.
Oversensitivity to stress, sounds and lights, smells and Many of us now react abnormally to simple stimuli of sounds, light and
touch. Whilst ETS is sometimes performed to combat social phobia, many of us
now have far reduced tolerance to stress.
Pain Sympathectomy has long been touted as a "cure" for pain syndromes, such as
the particularly nasty RSD (Reflex Sympathetic Dystrophy)/CRPS (Common
Regional Pain Syndrome). Long term pain which can be easily and directly
traceable to ETS does not seem terribly common. There are 2 important points
to make here: 1) ETS is not a valid option for pain syndrome. 2) ETS can cause pain syndrome where there was none previously.
Puffy eyes A common observation amongst ETS patients. This is interesting in that it is
another symptom shared by patients with thyroid problems, which are
ultimately disturbances to the endocrine system. Incidence is low, an
example of how we are all affected in so many different ways.
Raynaud's Disease This condition afflicts the peripheries, and is a touted reason for ETS.
Many experienced warmer hands for some extended period after the operation,
only for them to become sub normally cold afterwards. ETS corrupts peripheral blood flow and causes a condition similar to
Raynaud's.
Cold extremities
ETS causes contra lateral vasoconstriction, leading to cold extremities in
the areas of sympathetic denervation. Many of us found that our hands were
warmer than normal after ETS, before they gradually went the opposite way,
and become prone to being frighteningly cold. The interesting question here,
is that this does not apply purely to the areas of sympathetic denervation
(hands, fingers, ears etc), but can also affect the feet, which maintain
sympathetic innervation's after ETS.
Reduced pulse
This consequence of ETS
is hailed as a positive by ETS surgeons. However, little connection is made
between those patients who might benefit from a reduced pulse, and those
patients which are admitted for ETS. Moreover, acceptance of the degree to
which this is a problem is again disputed by ETS surgeons.
Rhinitis
Problems with nose and eyes can occur after ETS, including runny nose. This
does not appear to be terribly common, but has been admitted by Gossot et al
(Long-term results of Endoscopic Thoracic Sympathectomy for upper limb
hyperhidrosis) as appearing in chronic form in 2.4% of their sample of 382
patients. Another study (Video assistance reduces complication rate of
thoracoscopic sympathicotomy for hyperhidrosis (Johannes Zacherl, MDa,
Martin Imhof, MDa, Erik R. Huber, MDa, Eugen G. Plas, MDa, Friedrich Herbst,
MDa, Raimund Jakesz, MDa, Reinhold Függer, MDa) studied 558 patients and
found 8.3% with Rhinitis. They refer to vasomotor rhinitis as "another
symptom of a stellate ganglion lesion"
Skin problems Lack of melanin, means reacting differently to sun. The skin is apparently
the biggest organ in the body. Whilst the denervated top area may suffer
from anhydrous and early aging due to ETS, the bottom half may be
susceptible to sweat induced rashes in cleft areas, such as between the
toes, or on the groin. Moreover, those who suffer permanent cold feelings
may experience this all over the body, in both denervated and still
innervated halves. The constant coldness suffered by some members might best
be explained to those who thankfully do not suffer this, by reminding them
of the feeling experienced with severe sunburn ~ the shivers, shakes and
flushes. Interestingly, a praised side effect of ETS is that it can reduce
acne, however, some have experienced very difficult skin conditions such as
eczema. Some members also report a reduced ability to tan after ETS. it is
pleasing to hear that some patients' post ETS complaint about dry skin have
eased with time.
Thermoregulation Unfortunately, it is not only the extremities which are subject to cold
sensitivity. For some of us, the whole body is subject to thermoregulatory
problems. Whilst the peripheral coldness described in the Raynaud's Disease
section can sometimes be akin to a frozen chicken feeling, this total body
thermoregulation is less severe, and can be described more as a general
feeling of being cold. Whereas the peripheral problem is largely influenced
by external temperatures, this total body thermoregulatory problem can be
evident regardless of temperature.
Tinnitus Medical professionals using this site will not be surprised by this result
of damage to the sympathetic system. It is well documented in other
syndromes. This is not terribly common.
Compensatory sweating
Everyone talks about the dreaded CS
(Compensatory sweating ) which almost 100%
of the people will have after ETS, even the doctor's websites can't avoid
mentioning it any more. But over and above the recognized side effects such
as CS, fatigue or Horner’s (droopy eye), there are so many other smaller
side effects that none of the websites mention, but which can make life much
more uncomfortable, if not down right miserable.
Here's a list of other side effects/discomforts.
Not everyone is
going to be affected by every side effect listed here, but enough of people
have agreed that many of these things started happening only after having
ETS. CS can get progressively worse and other problems can develop over
time.
Acne Aged Hands Anger
Anxiety Back Pain / Nerve Pain Bad Circulation Blushing Body Odor Brittle Nails Burning Skin Sensation Can't get the temp right Chest Hair with
Distinct Line of Different Colors Chest Pain Cracked, Dry Lips Chronic
Fatigue, Lack of Energy Depression Dizzy Dry Itchy Scalp Eczema Excessive
Dandruff Extreme Dryness of Hands,
Hands Feel Like They Are Sunburned and Electric Eyebrows Thinning Face
often hot Facial Pain Feeling Hot all the Time Feet Sweat Flushing Groin Sweat Gustatory sweating
Hair Falling/Thinning Out (even young women) Hard, Sore & Sensitive
Nipples Headaches Impotence Inability to Tan Leg Pain Loss of
Adrenalin High Low Libido Muscle Weakness ("lactic acid in the arms") Nerve Pain - Intercostals neuralgia Oily
Face Premature Grey Hair Premature Wrinkles Raynauds Disease Sensitivity to Cold Sensitivity to Heat Sensitivity to
Light Sensitivity to Smells Severe Compensatory Sweating Shortness of
Breathe
Slowed Reaction Time Slowed Speech Slow Heart Rate Sores that don't
Heal Spacey Feeling Stomach Problems (constipation or diarrhea)
Stuffy/Blocked Nasal Passages Urinary Problems Weight Gain
Some of the above symptoms may be the same,
but are described with slightly different words.
Here are my suggestions:
When you read about what a complicated system the sympathetic chain is, you
wonder how anyone can allow surgeons to perform ETS.
If you are considering having ETS, I strongly recommend that you first try
other remedies. However, I also understand that some people may feel surgery
is the only option left. With that in mind, I've put together a suggested
list of questions you should ask your doctor.
Don't rush into surgery; take your time and do as much research as possible.
If you have doubts, postpone your decision until you are completely sure
that surgery is the only option left. Remember, this is surgery--it can not
be fully reversed (this includes early removal of clamps). Even the most
experienced ETS surgeon cannot guarantee good results.
1.) Consult at least two physicians that are familiar with the
procedure but do not perform the procedure or have any financial interest in
your decision. Try seeing one dermatologist and one neurologist.
2.) Bring a family member or close friend to the consultation. Having an
objective third party present will prevent you from making an emotional
decision regarding the surgery.
3.) Do not make your decision based solely on information gathered from
surgeons websites, brochures and phone calls to the surgeons office.
4.) Do not schedule a consolation that can be followed by a surgery the same
day. Go to a consultation and then spend at least a few weeks considering
the risks.
5.) If you go alone to the consultation, bring a tape recorder to record the
conversation. Tell the doctor you want to record the conversation. If he
objects, then you have learned something about him.
6.) Realize that testimonials from happy post-op patients are anecdotal and
do not reveal anything regarding the possibility that you will regret the
surgery.
7.) Even though a minority of patients regret the surgery, regret is not at
all rare. A five percent regret rate is 1 in 20 patients. A minority for
sure, but it’s hardly a rare occurrence. Many studies demonstrate regret
rates much higher over the long term.
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